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Friday, July 26, 2024

A Lifelong Battle: Maya’s Journey with Type 1 Diabetes and the Fight for a Cure

Type 1 diabetes (T1D) is a relentless autoimmune condition where the body’s immune system mistakenly attacks and destroys the insulin-producing beta cells in the pancreas. Insulin is a crucial hormone necessary for life, and without it, individuals must rely on external insulin administration via injections or pumps. While insulin is a lifeline, it is not a cure. T1D is a chronic disease that can manifest at any age, is not preventable, and currently has no known cure. This condition affects over 130,000 Australians, with more than 2,900 new diagnoses each year. Those living with T1D, along with their carers, endure a perpetual struggle, managing the disease every moment of their lives.

A Lifelong Battle: Maya’s Journey with Type 1 Diabetes and the Fight for a Cure
Angelo, Emma and Maya Konstantinou. Image supplied

Maya Konstantinou, a bright and spirited four-year-old, was diagnosed with T1D at just two years old. Her parents noticed the classic signs: excessive thirst, frequent urination, constant tiredness, and significant weight loss—the “four T’s.” Fortunately, Maya’s diagnosis was swift, sparing her from the severe complications that can arise if the condition is not caught early. Some individuals only receive their diagnosis when they are gravely ill with diabetic ketoacidosis (DKA), a life-threatening condition that can lead to unconsciousness and even death if left untreated. Recognising the signs and symptoms of DKA is crucial for timely intervention.

Maya has become a passionate advocate for T1D awareness and research. As a Juvenile Diabetes Research Foundation (JDRF) advocate, she has taken her cause to Parliament House, championing critical initiatives like the Type 1 Diabetes Clinical Research Network (CRN), which connects over 250 researchers dedicated to improving the lives of those with T1D. Her efforts were recognised when she was named the JDRF ACT Youth Volunteer of the Year for 2024.

For the Konstantinou family, T1D is deeply personal. Maya’s father, Angelo, also lives with the condition, and the family has a history of T1D spanning multiple generations. Maya’s future will involve constant vigilance—monitoring her levels, counting carbohydrates, administering insulin, and managing both the physical and mental health challenges associated with T1D. Despite the stigma, judgement, and exclusion she may face, Maya’s family is committed to supporting her and advocating for better treatments and, ultimately, a cure.

To further this cause, the Konstantinou family, along with three other committee members with strong links to T1D, is organising a Type 1 Diabetes Gala on Saturday 22 June at the Hellenic Club in Woden. The event aims to raise funds for T1D research and increase awareness of the daily challenges faced by those living with the condition. The evening will feature auctions and entertainment, with all proceeds going to JDRF. JDRF is the leading supporter of T1D research globally, with a vision of a world without T1D—a vision shared by Maya’s family and many others.

The Konstantinou family invites everyone to join them on this journey to raise awareness, drive change, and work towards turning type 1 diabetes into type none. With continued investment in research and community support, there is hope that Maya’s lifetime will see a cure for T1D.

Click here to purchase tickets to the 2024 Type 1 Diabetes Gala.

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